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Federal legislation called HR1 from 2025 has made many changes to Medicaid that may impact what you have to do to get and keep coverage. We have basic information here. For expert help with Medicaid you should contact a qualified source.
Federal legislation called HR1 from 2025 has made many changes to Medicaid that may impact what you have to do to get and keep coverage. We have basic information here. For expert help with Medicaid you should contact a qualified source.
NY SOH information on Medicaid changes
NY SOH information on Medicaid changes
New York State of Health is the official health care coverage marketplace website run by the NYS Department of Health
New York State of Health is the official health care coverage marketplace website run by the NYS Department of Health
This information is directly from NYS SOH. For more details you should visit their website.
NYS SOH has begun releasing detailed information on HR1 related changes to the NY Medicaid program for providers, patients, and families. The information is available for download in 13 different languages from the NYS DOH website. Links to key documents are provided below,
Updated as changes occur and information becomes available
SOH is your source of information about Medicaid and coverage options
Alerts can include reminders for when it's time to renew your coverage
New Medicaid work reporting FAQ
New Medicaid work reporting FAQ
This FAQ is from Medicaid Matters New York, a state coalition of groups and individuals advocating on behalf of people who need Medicaid. Many MMNY members are experts and work full time on behalf of the people they serve. NYSRDC is a proud member of MMNY.
NYS Medicaid - A lifeline for many
NYS Medicaid - A lifeline for many
New York State Medicaid provides coverage to people in a variety of situations.
New York State Medicaid provides coverage to people in a variety of situations.
The information here is taken directly from the public-facing NYS Department of Health & Medicaid website and is being reposted here as service to the rare disease community.
New York's Medicaid program provides health coverage to more than 6 million New Yorkers. Medicaid pays for a wide-range of services, depending on your age, income, family and life situation, These services are provided through a network of health care providers that you can access directly using your Medicaid card or through your managed care plan if you are enrolled in managed care. Some services may have small co-payments, which can be waived if you cannot afford them.
Did you know?
Over 50% of children with a rare disease in the U.S. rely on Medicaid for their healthcare, making state Medicaid programs the single largest insurer of rare pediatric conditions in the country.
An estimated 1.8 million New Yorkers live with a rare disease, enough people to fill Highmark Stadium in Buffalo twenty-five times over.
New York tests every newborn for over 50 rare conditions right at birth, and if a rare disease is found Medicaid can ensure eligible infants get access to specialist care.
A brief explanation of Medicaid
Medicaid is a joint federal and state program, which means it’s funded and run as a partnership of the state and federal government. Medicaid is run at the state level, with the federal government setting many of the major rules (through the Centers for Medicaid & Medicare Services) while New York sets other rules. Medicaid was created in July of 1965 when President Lyndon B. Johnson signed the Social Security Amendments of 1965 into law (under Title XIX of the Social Security Act).
This information is for reference only. If you have Medicaid, or want to apply for Medicaid, and need help, you should seek expert help from a qualified source - see the links above!
This information is for reference only. If you have Medicaid, or want to apply for Medicaid, and need help, you should seek expert help from a qualified source - see the links above!
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